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Hirsute pursuit
2007-05-11 21:46:00
I spray her entire head with detangling matter and set about the task of turning a bird’s nest into a respectable head of hair. This activity is far too close to the category of undoing knots, which is spouse’s department. Life is too short to undo knots. I refuse to undo knots I just snip them out. I am allergic to knots. Tangles are a subdivision of knots. I have long since delegated this category of tasks to spouse due to his superior skills, both fine motor and patience. She has decided to let her hair grown long. I have not decided whether to permit this course of action, or not? I am still dithering on my proverbial fence, weighing up the pros and cons. My daughter is under the impression that she has a choice. I wish to avoid the situation that I found myself in a decade ago with senior daughter. Yards of thick hair, a veritable rope to challenge Rapunzel. Too much for a teenager to manage. I didn’t have the time to teach her how to manage her ever burgeoning


Forgiveness and acceptance
2007-05-10 22:44:00
We interupt our scheduled programming for a brief interlude of sentiment. Apologies in advance for squishiness, but in the spirit of "foreigners," all of us need translators sometimes, and a "open hand."When we visited Italy just after the boys had been diagnosed as autistic, I remember being intensely annoyed by people saying that I was ‘bellisima,’ which roughly translates to ‘beautiful.’ You should know, that physically I resemble an elderly stick insect, bi-focaled, with more than a touch of the grays. I assumed that they were being both polite, kindly and patronizing, but I was at a loss to know which I found more annoying or why? My dear Italian mother in law, detected my irritation and gave me a different version. It has taken me a long time to translate her meaning………..We meet a woman in the park. [translation – the most loathsome place on the planet] My boys amble around in a wayward spirit. The woman, probably an office worker, is minding her own busine
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Drones – message received and understood
2007-05-10 04:10:00
A chum of mine, [translation = British] refers to her daily life with her autistic child as ‘Groundhog days.’ This refers to the film where the actor repeats the same day of his life, again and again without apparent end. Parents of young children often repeat the same life lessons until they are acquired, but for autistic children the process may take longer.Last summer one of my boys had a chance encounter with a bee. The bee and my son were outside the house, in the garden at the time. [ translation = a rare event, now sadly, all the more rare as a consequence] The bee did not attack him. As my son floated in the pool so did the bee. The bee was in it’s last death throes when they happened to come in contact and it stung him. My usually silent son, made known his condition. Fortunately he removed himself from the pool prior to his quite reasonable meltdown. [translation = otherwise he and the bee might have come to the same untimely end]He survived, the bee did not.
Read more: Drones

If I die before I wake………
2007-05-15 00:57:00
I stand bleary eyed by the kitchen counter sipping black tepid coffee. [translation = my punishment for being distracted] I contemplate life, the universe and everything, as I watch small people at 5:15 in the morning. Wills, living wills, trusts, trustees and guardians, power of attorney - enough to make your head spin and your brain turn to mush."If you can't say anything nice, don't say anything at all!" he repeats as he runs backwards. This phrase is on his "now playing' list. [translation = an endless loop] I hope that this current phase, will be short lived, but you never can tell with these things, the walking backwards that is to say, not the "motor mouth." Oddly enough he rarely bumps into anything. To date we are on our fifth week of' backwards' and of course he improves daily. [translation = becomes ever more agile and speedy] It seems grossly unfair to criticize him for such an innocent pastime, since my main objection, danger, has been unsubstanti


Peer Pressure
2007-05-14 00:02:00
Once upon a time a very long time ago I sat by a swimming pool with my mum. I was a teenager. [translation = late developer] I pulled blades of grass out of the ground whilst my body dried in the sun. My mother asked me whether I thought it was appropriate for women of her age to wear bikinis? I had no idea what she was asking me. Was it a question of immodesty? At that time the issues of weight, dress code with reference to age, feminist matters and sex where not on my radar.When my daughter was about to enter third grader, her male teacher at the time commented upon the fact that the majority of her friends were boys and that sadly, this would change during the following year. As an experienced teacher, I was keen to quiz him as to the whys and wherefores? I should point out that both my girls are considered to be Tom Boys on this continent. [translation = standard fare in Europe] Both girls gravitate to boys because of their active natures and inability or unwillingness
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Let them eat brioche!
2007-05-12 19:34:00
I am faced with a moral dilemma of gargantuan proportions. [translation = as well as a minor etiquette issue] Tis the season of school wind down when invitations proliferate. Kindly folk at the school wish to offer thanks to their volunteers and show their appreciation for inadequate services rendered. I find this a particularly delightful element of the American psyche. British people generally believe that they have a complete monopoly in the polite department, in both quality and quantity. Yet I do not ever remember experiencing such an outpouring of well wishes for minor services. [translation = although things may have changed in that last couple of decades] One of my favourite authors, "Mr.Bill Bryson" has also remarked, much more eloquently upon these perceived differences.I now find that in addition to the above, I, as well as all the other mother's, have been invited to attend a "Mother's Day Celebration' in Junior's class. I am led to believe that the sub-


Hidden talents are squashed by a bushel
2007-05-17 23:06:00
I am excused therapy duty due to an inability to communicate verbally without spitting on people. Spouse takes the boys to occupational therapy. My daughter and I finish off her homework and commence thumb twiddling.“How about we play football on the driveway?” I suggest on a beautiful sunny Californian afternoon.“You can play football?”“Of course!” I lie. Since the boys refuse to go outside unless bribed and even then, only visit fleetingly amidst much squalking and far too much protective clothing, this is a rare treat for us both. It takes a while to find one soccer ball that hasn’t given up the ghost. We make do, as we don’t wish to waste valuable minutes locating a pump and other accessories. I open the garage door, which provides an extra wide goal. I take the road side. Together we play for just gone an hour.“Gosh Mom. I didn’t know you could play football so well!” she offers breathily. I beam braces back at her, “did you have fun, just the
Read more: Hidden

Clash of the Titans
2007-05-17 03:01:00
Sometimes, especially when they were younger, people would mistake my boys for twins. One with long legs, one with a shorter body meant that when they were sitting they seemed the same size. Like most twins or siblings, any similarities between them are of little significance. It is their differences in personality, character and disposition that singles each one of them out. If you then cover that child with a layer of autism, a patchwork quilt, [translation = homemade and of a unique variety] the result is too complex for the average nitwit, [translation = parent] to fathom.Unfortunately for them, I am the designated nitwit of the household.All human beings have little triggers, things that set us off, irritations and foibles. Sometimes we can identify the cause, something from the past that makes us react in a certain manner. Other times and other things we just accept, it’s part of our own singular make up. We find methods of coping with these triggers such as avoidance.
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Scheduling the autistic child
2007-05-16 04:23:00
When your child is diagnosed with autism, there may be a tendency to panic. [translation = probably only me] It is quite possible that panic will prompt a parent into frenzied activity. [translation = research ‘fix it’ yesterday, but faster] After this phase when the fog lifts a little, it may be that the parent sets some goals, tiny ones. It is a good idea to identify some trivial matter that makes life exceptionally difficult and work on that little bit only. [translation = baby steps] In our family circumstances, I decided that henceforward, we would collect the mail from the mailbox every day.Let me explain. The mail comes daily and is placed in the mail box on the fence in the garden. I found that I was unable to leave the house and the mail would accumulate day after day, much to the annoyance of the mail carrier. The problem, was that if I left the house with my children inside, they would panic during the minute and a half that I was absent, even though I was cle


Don’t try this at home
2007-05-21 00:51:00
Your mission, should you care to take it………is to herd three children from the school yard [translation = playground] to the car parked by the curbside at a distance of a mere 50 yards from where you currently stand?Recipe – take two people, one adult and one child. Ready? Stand together so that as much of your body is in physical contact with the other. [translation = it doesn’t matter whether you’re front to back, back to back etc.] This is your starting position. Set? [translation = get ready] It is now the smaller person’s duty to rotate around the larger body, whilst remaining in physical contact at high speed. Go! The bigger person must now walk towards the car whilst the other continues to rotate. The smaller person must move their feet with greater agility to avoid entanglement. [translation = a bit like French skipping] Additionally the smaller person should repeat a phrase of three words continuously, preferably rhyming, at just the right pitch and at 50


Flip a coin
2007-05-20 00:15:00
During the lull at the IEP meeting, when i’s are dotted, t’s are crossed and photocopies made, I chat to the other team members. I remark about how well the play dates have been progressing with the child we called Joe, in my older son’s class; what a delightful boy he is, so sweet natured, such language facility, how my boys are able to ‘share’ him, how patient he is with them both, how’s he managed to magically lure them outside……I glance up when I realize that I am rambling, to check that we are of one accord regarding Joe’s outstanding personality, so that they may contribute to his adulation, that "paragon of virtue," lucky boy, lucky family, lucky school. I see widened eyes and electricity pass between them. Initially I put this down to confidentiality, which is as it should be, but a blurt or two corrects my misapprehension. Their experience differs from mine. I note the double check. Are talking about Joe here? Indeed I was. Joe, who like my son, is a


Early Days 8 - cracking the code
2007-05-18 17:54:00
That innocent word, 'play' can be huge hurdle for some autistic children. "Scheduling time" is a marathon and many of us, parents that is to say, have a hard time planning out what to do, how and when?What we [parents] refer to when we say 'play' seems simple enough and doesn't need any explanation, but 'play' when it comes to autistic children may not be quite so straightforward.If you looked at my boys when they were little, you would have seen them playing, not just the typical autistic play of lining things up, moving toys in a mechanical and repetitive manner, examining some tiny feature on a toy but behaviour that would 'pass' as typical play. Teasing these elements apart, unless you are very observant or a play therapist, is not that easy for the novice. [translation = me]The key element that experts often refer to is 'lack or impairment of imaginative play.' When I looked at my boys, I would see them pretending to be dinosaurs, or dinosaur eggs. To me that loo
Read more: Early , Early Days

Cat therapy
2007-05-23 21:54:00
Many children do not share. I’m not talking about sharing of things, such as toys, but the more important kinds of sharing, such as experience. Child development often includes moments of shared attention, [translation = look at the bird flying] and other pointless social moments. [translation = I like that blue flower] Some children, especially if they are autistic, do not develop this trait when their peers do. [translation = but it might come later, if you’re very lucky] This is not to denigrate the power of "dogs," but there is also a place for felines. Words flow because it is first thing in the morning. [translation = a full bank of words available, retrieval is free and unfettered] Frenzied cats are electrified all around the house and frenetic children also buzz. My son hurtles towards me screaming. [translation = happy, excited, willing to communicate]“He is dunning it!” he splutters amid frantic arm gestures that I am unable to interpret. I am distracted


If you can’t say anything nice…..
2007-05-22 21:53:00
They are all in bed being tucked in for the night after a long and busy day. This is also the time to lay to rest any outstanding snaggles, so that peaceful rest may ensue.“It dumb!” says my eldest boy with a limited word bank at the end of the day.“What is dumb dear?”“Doz fings.”“Which things?”“Todd Parr.” [Translation = the decorative ‘transfers’ on their wall]“I didn’t know you knew his name?” I mutter half rhetorically even though we have read all of those books more often that I care to recall.“Yes.”“Why don’t you like them?”“Dey are for babies.”“Space things are for babies?”“No!” I look up at their walls, spaceships, stars and cheerful primary colours. Spouse is with Junior on his bed, on the other side of the room. All four of us look up to examine their walls. I calculate how many years this theme has been in place? Maybe 6 or 7? His birthday is imminent. He will be 8 years old. I can just make out spouse’s eyes i
Read more: anything

Dress for Success - Appropriate Attire
2007-05-21 21:56:00
How would you advise a middle aged woman to dress for a day out, to a family friendly, outdoor, public event ? I’ll make a suggestion and you tell me if I am right? Comfortable jeans, sludge coloured to disguise the stains that will be acquired during the 6 hour trip. Cotton socks and comfortable trainers. [translation = sneakers?] Short sleeved T-shirt to avoid the embarrassment of string straps leaving the shoulders and "exposing" more "flesh" than might be wise, even though the climate is warm. An open in the front, light cardigan for those air conditioned tents. Have I missed anything? Maybe a neon baseball cap to make myself more easily identifiable in a crowd. The underlying theme here, is comfort rather than fashion. What do you think? Will I do?I thought I would do, but I didn’t, ‘do’ that is to say. I had forgotten a few things. The first thing that I had forgotten, was that my boys’ fine motor skills are now so advanced that they can undo "zips." [tran
Read more: Success , Attire

And other dis orders
2007-05-26 21:55:00
Back in the good old days of yore, children played doctors and nurses. More often than not, the boys would be the doctors and the girls would be nurses. [translation = unless you were a big sister] The doctors would examine the victim, determine symptoms and then chop things off. Nurses were left to stitch up holes, apply bandages with non safety safety pins and then clean up the mess.It is my contention that there are really only two types of people in the world, namely nurses and non nurses. Nurses are caring, sharing, kindly types where nothing is too much trouble. Non-nursing types get annoyed about the bodies messing up the family room. I mean, if you’re ill, you go to bed to get better. [translation = so much tidier] If you’re ill, you do not drip around the house getting in everyone’s way. Illness should always be invisible or failing that, upstairs in bed, where one can be visited and tended too are regular intervals.Although I am a picture of health myself, if
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Camping – babes in the wood
2007-05-25 12:57:00
For reasons too dull to detail, I do not camp, but spouse and the children love to camp. Nature, in all it’s glory, is best viewed from behind a double glazed window, close to a grate ablaze with a glorious fire and a pot of tea near to hand. [translation = "tamed"] They camp once a year, overnight. They camp with a family who have been our close friends for a long time. In previous years, I have spent the time alone, making up medical insurance packages for each boy; sorting the bills into date order, child order, therapist order, 13 sessions per week. An empty house means enough floor space for this paper trail. I anticipate this time with glee, no responsibilities whatsoever for approximately 36 hours, depending upon the traffic. I always doubt that I will manage to complete my paper trail before they return, that they will explode into the house and that my carefully stacked piles of paper will become so much tickertape. After they have been gone for between four or five
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A mere fly on the wall
2007-05-24 21:51:00
Warning – ear wigging is dangerous [probably offensive] One year ago......A few years ago, I began to understand the camaraderie of parents, especially mothers with children on the spectrum. Initially I had thought I was the only person on the planet………then I learned that there were so many other people in a similar floatation device.I sit in the waiting room at occupational therapy. Two mothers are in mid discussion. The terminology they use, indicates that they are up with the hunt. [translation = done their research] I try not to listen as they chat with each other, but there is only 3 feet of carpet tiles between us.“So what’s his Rx, if you don’t mind me asking?” [translation = diagnoses]“Not at all. He has sensory integration disorder and dysgraphia…..of course!”“Oh course!" they giggle. "No autism then!” Why does that sound rhetorical?“OH NO! OF COURSE NOT!” she gasps, her hands to her mouth in that shy, private manner some people have.Th


Engineering perfection
2007-05-29 11:04:00
Two of my four children to not like the ‘great outdoors.’ [translation = my autistic boys] In order to overcome, or at least ameliorate this obstacle, we have been working on a campaign to desensitize them. [translation = since each was able to walk]Timing is crucial, but that aside there are many other temptations available to the wily parent. [translation = deviant] I select my lures with great care, ensure that everyone has protective clothing on, [translation = sunglasses, baseball caps, clothing to the wrist and ankle] add preferred snacks in a shady corner and I’m just about ready.I run through my check list. What might I have either forgotten or overlooked? Nothing. Perfection has been achieved. [translation = everything is in my favour] I gather the troops and advice of forthcoming proceedings. Two faces scowl back at me. [translation = it’s still a transition and we hate transitions] My daughter skips out into the garden and calls to her brother’s with g


The curse of sun kisses
2007-05-28 13:57:00
I am blessed with freckles, so many that you can’t put a pin between them. Whilst I used to loathe them, I have gradually grown to accept the status quo. This occurred in part, due to gentle gentleman in France. He explained to me, that in Germany, people call freckles ‘sun kisses,’ which somehow sounded so much better. Now that my skin is turning into rhino hide, my ancient wisdom is reflected in age spots instead. I don’t know the German for age spots but they don’t fuss me much either. The ones that really annoy me, are the badly placed marks. In this particular instance, it is not vanity, more the unexpected consequences of having a mark where a mark should not be. The visual acuity of an autistic child [or adult] can often be quite extraordinary. This means that a cluster of random freckles that overlay one another, especially as the sun moves us into Summer, become the equivalent of constellation study. Groups of freckles can become shapes. [translation = o


No beating around the bush
2007-05-27 17:15:00
["Ben Ownby" Found Alive]I print off the email from the school and march into the family room for a serious discussion. It has arrived minutes after I have read about a "safety" programme in what is clearly becoming "the State" that is ahead of the hunt. I give them the pertinent facts gleaned from the warning notice from the school, once I have commanded their attention. [translation = no mean feat! Perhaps I should have done this one-on-one instead?] I quickly find that I have taken on the role of game show host. 'Silver Sedan car, white male with dark hair, 'help me find my dog' to one of the children at their school.'A near miss for that child, who beat a hasty retreat to an adult. We cannot be as confident of a similar response.“No a dog!” protests the superhero of felines. A group discussion ensues as the merits of saving various types of pets, but rapidly descends into a debate about species of animals. I corral them all in – back on topic. What would each of
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Early days 9 - Please explain what you are doing and why?
2007-06-02 11:26:00
I consider myself to be a logical and efficient person. All too often I find myself in an odd spot. This spot and it’s oddness, are usually revealed to me by an independent third party, the really logical and efficient one.Like most parents, I adapt my own behaviour to cater for my children’s needs. These behaviour patterns build up over a very long period of time, especially if your children happen to be autistic. What seemed like a jolly good idea at the time, [translation = step in the right direction] can end up being a straight jacket. [translation = the need for sameness, routine and predictability]I open the door to my chum in my dressing gown. [translation = good friend and robe] My pal visits for coffee when my three youngest children are at home with me. We are in the family room attempting play, without coffee. [translation = we don’t want any accidents and anyway coffee ‘stinks’]“I want it!” screams Junior.“What do you want dear?”“Dah Bingo gam
Read more: Early , Please , explain , doing

Qualitative Vibraters – but does it work?
2007-06-01 14:35:00
Like most families, my children are a variety pack. [translation = should have gone for the clone option] Ideally, I would like them all to behave in the same manner under any given set of circumstances. [translation = a need for predictability, routine and sameness] Since my offspring fail to meet my requirements in this regard, I have had to adapt. [translation = Darwinism] Whilst I am allergic to shopping, I would have to admit, with reluctance, that my house is full of items that I have purchased. [translation = with the very best of intentions] I have made a considerable number of errors with my buying habits, as evidenced by the weighted vest. This was supposed to calm and ground my older son. I am uncertain whether the item in question, failed to ground him, or merely kept him pinned to the floor, but that is why it is so important to nail down your parameters before you start? So, saying, whilst the vest failed for him, it had quite a different effect on Mr. Sparky.


Suck on that you Rich Vandal!
2007-05-31 22:35:00
We continue our conversation regarding my "unfortunate purchase," of a sound machine as a sleep aid. [translation = extravagant whim]“I still don’t really understand why you bought it in the first place?”“I had only the very best of intentions.”“Maybe, but these impulse buys are always a mistake.” [translation = the road to Hell]“I was under extreme duress at the time.”“Oh you had them all with you then.”“Yup, in Target.”“Well that was your first mistake.”“Target or taking the children?”“Both really now I come to think of it.”“I only went there for two things, milk, a birthday card and the sound machine.” “That’s three!” [translation = clocks the mathematically challenged person]“Well I was only going to look at the sound machines not actually buy one right away.”“Definitely two then, because ‘looking’ and ‘children’ are mutually exclusive tasks. So what went wrong?”“I had one lying on my feet, but that was sort of o.


Thinking Blogger Awards
2007-05-31 11:35:00
Can someone please give me an accurate definition of 'meme' as my 1985 Oxford English, two volume dictionary, is of no help?I have been tagged by "abfh" for the Thinking Blogger meme.Many thank you's for forcing me up the blogging learning curve! These are the official rules for participation:1. If, and only if, you get tagged, write a post with links to 5 blogs that make you think,2. Link to "this" post so that people can easily find the exact origin of the meme,3. Optional: Proudly display the "Thinking Blogger Award" with a link to the post that you wrote.That aside1. I tag "Jambav Parenting" because they were one of the first groups to contact me when I started blogging. Their's is a collective effort, which means that the variety and range of parenting experiences gives me a more balanced perspective. [translation = also, we share a common language, as 'American' is far too tricky to understand]2. Then "Facing Autism in New Brunswick," because I am a frequent visitor, lo
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Suck on that!
2007-05-30 16:00:00
“Honestly Madz! You’re such a sucker!” offers my worldly wise pal. [translation = American] {And there was me thinking that it was only Brits who contracted people's name to a single syllable!} In the background I hear a debate in the family room, first echolalic and then deliberate.“Mummy is a sucker?” “No, she is…..suck ….her, you dumbass!”“A suck her?”“Yeah, she not a suck him coz she is dah wimmins!”“Oh right!”“Mummy is a suck her, Mummy is a suck her, Mummy is a suck her.” It sounds vaguely normal, in a most disconcertingly offbeat manner."What it is?""What?""What it is dah 'suck her'?""I don know.""Mummy is dah bad suck her.""Yeah she don suck no good.""Wonky.""Yeah wonky teef."I don't think I have often heard my children discuss me. Still you never hear anything good about yourself if you ear wig. Maybe I exist afterall?“Mummy is a bad suck her, Mummy is a bad suck her, Mummy is a bad suck her,” they chorus and giggle. They add th


Wading through Treacle
2007-06-05 22:02:00
Let me just say at the beginning, that I have long been aware that my children, like many others, are not the kind of children that can be hurried. Although I have the standard stock of phrases at my disposal to engender hurrying, I have yet to detect any crumbs of evidence, that they are effective. [translation = in any way whatsoever] For some strange reason, I continue to use them, frequently. [translation = very old dog sticking with ancient non-functioning tricks]Elderly brains are quickly confused. If the mother in question visually witnesses a great kerfuffle, [translation = children bouncing around the place] she may mistakenly interpret this as movement. A wiser mother would recognize this phenomenon as prevarication and avoidance. [translation = think zebra herd blending] No-one is actually going anywhere. [translation = circling the befuddled wagon]Now you would think, where two sons have severe speech delays, I would adjust how I talk to them? [translation = I


Not autism just complex advanced laundry skills
2007-06-04 10:46:00
When I was a youthful person, several life times ago, one of my hobbies was sub-aqua diving. Dive suits are made of neophrene. After every dive it is necessary to rinse off your suit with fresh water to ensure that this expensive piece of equipment does not rot prematurely. Ideally it should be left to dry under natural conditions. [translation = say no to tumble driers] If you care for your suit it will give you years of trouble free wear.Like many of the younger generation, my spoiled children enjoy the pampering of a lightweight wetsuit. [translation = no goosebumps for my little wimps] It is a well documented fact, that they only people who have swimming pools are movie stars, millionaires and show offs. [translation = and a few Californians, although these categories are not mutually exclusive] Around here, we lucky people enjoy a swimming pool in our very own garden and it is kept warm by solar panels on the roof of the house. As soon as the pool water reaches 96 degrees


Autism and loss
2007-06-03 21:35:00
If you have an autistic child, you lose a great many things. Parents of autistic children are martyr’s of self sacrifice. I for one, would be the first to lie down and let my children trample all over me. [translation = deep proprioceptive input] Some of those sacrifices are huge and important. Other things are tiny and insignificant. One of the most hugest things that I lost, by having autistic children, was the joy of creating a birthday cake, once a year for each child. Matching the cake to the child, chocolate for one, lemon for another and…….well no cake at all for him, come to think of it. To make the perfect cake to match the perfect child, is no mean feat. Although I fancy myself as quite a baker, if truth be told, I am but a mere amateur.Once you have chosen the perfect cake, you have the delight of toying with the perfect frosting, the endless possibilities and combinations. The only greater pleasure in making the perfect cake, with the perfect frosting, is de
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No time like the present!
2007-06-03 14:27:00
The sense of urgency when your child receives a diagnoses of autism can be overwhelming. It is as if everyone is yelling ‘early intervention’ at you. As a parent, you are of course willing to do anything and everything possible to help your child but the choice of options is phenomenal as well as expensive. Lets move to the best school district tomorrow. No make that today, or yesterday come to think of it. Wait a minute the best therapist is in the opposite direction. Can we commute? How often can we commute? Can we afford it? Should we live on a train permanently and save money on rent? Nevermind, the best therapist in the area has a waiting list of over 8 months. Goodee we’ve avoided living on a train for the next 8 months. It is at this early stage, that parents most resemble headless chickens. Every free moment is spent on research. Every other moment is spent worrying. It is a frantic time for everyone. Do something! Do something now! Anything! Fix it befo


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