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Dr. Phil Profiles Plight of Family with Deafblind Triplets
2007-03-01 05:30:04
Today’s episode of the Dr. Phil show profiled a heart-breaking story about the mother and step-father of 3 young, deafblind triplets who are struggling to cope with raising them. The episode is called “Silent Darkness” and a full summary  and slide show of photos can be seen here by clicking on the various links on that page. At 6 years old, Zoe, Emma and Sophie have severely delayed language abilities and are still not toilet-trained. The stress of handling the daily tasks of living - eating, changing, playing, sleeping - is taking a tremendous toll on Liz and George Hooker’s marriage. Dr. Phil has taken extraordinary steps in trying to assist them in both saving their marriage and helping the girls and their older sister lead improved lives. A previous guest on his show, Cory Hudson, is producing a documentary about the girls’ lives called, Through Your Eyes which has a release date of April 1, 2007. 100% of the proceeds of the documentary wi
Read more: Profiles , Family , Triplets

HearingExchange Founder’s Bilateral Cochlear Implant Evaluation
2007-02-28 05:52:08
This morning I am off to the city, to NYU’s Cochlear Implant Center, for an evaluation of my non-implanted ear. My left ear used to be my “better” ear, the one I used to talk on the phone with for over 30 years. Now it feels like my “dead” ear. My (right) cochlear implant ear has taken over listening and understanding everything. I remember thinking how odd it was that my right ear, which had never been able to discriminate speech on the phone with a hearing aid, became my better ear with a cochlear implant. After a lifetime of dealing with a progressive hearing loss, I am looking forward to becoming a binaural cochlear implant recipient. My first surgery was in July, 2002 and now I feel that I shouldn’t have waited so long to get the other ear done. But back in 2002, the traditional thought was to “save” the other ear for future technology. Many studies have been done and now the CI professionals feel that “two ears are better than
Read more: Bilateral , Evaluation

$150 Million Lawsuit Against New York School That Barred Hearing Service Dog
2007-02-28 03:06:33
UPDATE:  2/27/07 - U.S. District Judge Arthur Spatt rules against the Cave family and determines that the district has been serving their son well by providing a sign language interpreter, a student note-taker, an FM listening system, a teacher of the deaf and extra time on tests. Read the Newsday article here. Unfortunately, the article does not address the issue of the child’s safety needs. None of the accommodations mentioned by the judge will help the student in the event of an emergency whereas that is exactly what the hearing service dog has been trained to do. The family plans to appeal Judge Spatt’s decision. ~~~~~ ORIGINAL ARTICLE posted 2/15/07 It seems everyone is weighing in on a Long Island School district’s decision not to allow a deaf student to bring his new hearing service dog to school. The district says the boy does fine without it and the dog will be distracted by other students. They also note that some students are allergic to animals. The fami
Read more: Lawsuit , Hearing , Service

Gallaudet Accused of Changing Grades, Lowering Academic Standards, May Lose Accreditation
2007-02-22 06:29:06
Gallaudet University, touted as the nation’s only liberal arts school designed to accommodate the needs of deaf and hard of hearing students is in hot water once again. After a protracted, divisive protest over the incoming president that shut down the school for several days, issues brought up during that time have subjected the school to increased scrutiny. As reported by CNN.com, the Middle States Commission on Higher Education has decided to delay its decision on whether to renew Gallaudet’s accreditation. Lack of accreditation will signal that the school has not met basic standards of education, nor will students be eligible for federal financial aid. Faculty sources have said that professors felt coerced into changing grades of several failing students after they received a letter from the dean of the College of Liberal Arts, Sciences and Technologies asking them to do so. The faculty sources have declined to be identified because of fear of reprisals from the a
Read more: Changing , Academic , Standards , Accreditation

2nd Annual Cochlear Celebration News
2007-02-20 05:04:06
Cochlear Corp. held its 2nd Annual Cochlear Celebration in San Antonio last weekend. I attended the program last year and it was terrific meeting so many HearingExchange (HE) members in person. We learned a lot about the origins of cochlear implant technology as well as a variety of related topics. To see what was on the agenda for the 2007 program, click here. Longtime HE member, Mary S. wrote in with an account of her experience this year. Mary has a son with Auditory Neuropathy who wears two Nucleus Freedom processors. Here’s an excerpt of Mary’s report… We met Graeme Clark, the inventor of the cochlear implant, who spoke on the first day.  What an INSPIRATIONAL story!  Then Rod Saunders, the first man to ever be implanted spoke and again what a story!  I also got a copy of Prof. Clark’s book, Sounds from Silence, which both he and Rod signed. “Survivor” winner Tom Westman, a parent of a deaf child,with a cochlear implant, was suppos


Tween’s Second Cochlear Implant Results Defy Expectations
2007-02-13 05:23:00
My daughter, Julie has worn hearing aids since she was 2 and learned to talk as she was dealing with a rapidly progressive hearing loss. Within just 4 years she was a candidate for a cochlear implant. She underwent the procedure in 2002 and really took off with it. You can see her terrific early results in the journal I kept online at HearingExchange here. We kept the other ear stimulated by having her continue wearing her hearing aid and by doing auditory training with just that ear even as it got worse. Her hearing continued to deteriorate and in December 2006 Julie received a cochlear implant in her second ear at NYU’s Cochlear Implant Center. After a typical 3 week healing process, her new implant was activated on January 4th. Two weeks later we went back to her speech pathologist who works on auditory training and rehabilitation with her. Julie was tested on both closed and open sets of words. (Words she knew in advance and words she didn’t.) With her new implant on
Read more: Tween , Second

See Paula at EPCOT in Disney World!
2007-02-12 20:36:33
I just got word that the video my daughter, Julie, and I filmed for Cochlear Americas is now playing on the product wall in the Innoventions West building at EPCOT ! Four people with cochlear implants were featured, Julie and I were two of the four. Just filming it and knowing it would be seen by people around the world who were considering cochlear implants for themself or their child was exciting. Then, having it played on the televisions in all the hotel rooms at the AG BELL convention in Pittsburgh last summer was quite a thrill. (We were recognized every time we were together in an elevator!) But now, we’re “officially famous” according to Julie. And to think my husband was at a conference in Orlando and came home just two days before we found out we were playing there. The video is called, “Back to the Hearing World ” and is available from Cochlear. It’s a wonderful, informational piece showing 4 types of people and their cochlear implant experi
Read more: Paula , Disney , Disney World

Paula Joins the Blogging World!
2007-02-11 15:02:48
Hi everyone! When it came time to update my HearingExchange site, I decided to shake things up quite a bit! HearingExchange is now a weblog site, one where I can both report and comment on the news and offer my insights on hearing loss, cochlear implants and parenting a deaf child. But don’t worry, I still have links to all the areas the HearingExchange community has grown to love since 2000 when we first began. Links to the Message Boards (now called “Forums”) as well as News Archives, Paula ’s Pearls articles, Resources and more are all online here. Spend some time browsing the new site. Be sure to subscribe to our feed. You will be notified everytime there is a new post here. You won’t want to miss it! Share This
Read more: World , Blogging

Study’s Abstract on Risks of Hearing Loss and Meningitis Omits Facts
2007-03-06 05:36:12
The March 2007 issue of Otolaryngology-Head and Neck Surgery published a Danish study of 663,963 children over a nine year period. The gist of study’s widely reported abstract is the claim that children born with severe hearing loss are five times (and possibly up to 12 times) more likely to develop meningitis. The main conclusion in the abstract is that parents and health care providers of children with hearing loss should be more alert for possible signs and symptoms of meningitis, and vaccination should be considered. It is disturbing that the abstract makes no mention of the actual evidence upon which the researchers based their conclusions nor does it include complete information on the 39 children in the study identified with both hearing loss and meningitis. Did any of these particular children have a predisposition toward meningitis? The Centers for Disease Control and Prevention’s (CDC) website states that “some people with hearing loss were made deaf b
Read more: Study , Abstract , Risks , Hearing

Forums for Deaf Attorneys, Law Students and Medical Professionals
2007-03-07 04:25:03
I stumbled upon DeafAttorneys .com this week while analyzing my site’s traffic stats. It turns out that I was the subject of a discussion in their active forums. I’m both flattered and excited to have found this terrific resource. If you’re a deaf or hard of hearing law student or attorney be sure to join their free forums and subscribe to their newsfeed. The forum members are also interested in assisting administrators of law schools who have enrolled students with hearing loss.  The Association of Medical Professionals with Hearing Losses (AMPHL) is another important resource for people with hearing loss in health care careers (and students)including: physicians veterinarians audiologists nurses physical therapists pharmacists Fire, Rescue, EMT Personnel Physician Assistants technicians therapists Find out if you’re eligible for membership and the cost to join AMPHL here. Both organizations provide valuable resources and networking opportunities for deaf and
Read more: Forums

Comedy Nights Accessible to Deaf and Hard of Hearing in New York
2007-03-08 07:33:50
Do you enjoy comedy but hate missing the punch lines? For years this was upsetting to me. I’d work so hard trying to hear what the comedians were saying in dark and smoky clubs and then I’d miss the punch line. While everyone else was laughing and enjoying themselves, I’d smile to cover up how disappointed and out of place I felt. A few years ago I discovered that the League for the Hard of Hearing in Manhattan offered an accessible comedy night benefit. What a thrill to sit and enjoy the jokes like everyone else! With CART (Computer Assisted Realtime Translation) captioning, sign language interpreters and an infrared listening system, this is an event not to be missed by anyone with a hearing loss in the tri-state area - New York , New Jersey and Connecticut.  The next comedy nights are April 16th and 17th at 7:30 pm at Gotham Comedy Club at 208 W. 23rd St between 7th and 8th Avenues. A single ticket costs $60 and includes two drinks. A portion of each ticket is
Read more: Accessible

New HearingExchange Forum for Deaf and Hard of Hearing Teens at Facebook
2007-03-10 04:16:46
Is your teen looking to connect with other kids with hearing loss? Hearing Exchange has just introduced a new forum at Facebook , just for teenagers in high school and college who are looking to meet similar aged kids. HearingExchange Teens is a forum for deaf and hard of hearing kids and their friends to share their opinions, ask questions, and network with one another about issues related to hearing loss. All communication modes and choice of devices, or lack thereof, are to be respected. Discussions will be co-moderated by Mel Paticoff, a hearing teen interested in pursuing a career in deaf education. Mel has several family members who are deaf or hard of hearing. HearingExchange Teens is an off-shoot of the HearingExchange blog and resource community that has been online since 2000. Let your teenager(s) know about it today! Share This
Read more: Forum

Subscribe to HearingExchange News for Info on Resources and Products Related to Hearing Loss
2007-03-14 18:19:52
Don’t be left out! Join nearly 5,000 subscribers to the Hearing Exchange News email newsletter. Each month we notify you about interesting articles, helpful links and a myriad of great resources related to hearing loss, cochlear implants, parenting deaf children and much more. I’ve done the legwork for you and it’s free, so click here to subscribe now. Plus, we have a great selection of devices and publications that you should know about, including the Dry and Store Global, a portable, electric dehumidifier and sanitizer for both hearing aids and cochlear implant processors. No one with these aids should be without one, especially in the coming spring and summer months. Parents of young deaf and hard of hearing children interested in teaching them to talk should know about “My Baby and Me - A Book About Teaching Your Child to Talk.” Used worldwide and written and developed by Betsy Moog Brooks of the Moog Center for Deaf Education, this is a both a terrifi
Read more: Subscribe , Resources , Products

Annual Competition Honors People Changing Perception of Hearing Loss - Call for Nominations
2007-03-15 22:15:51
Oticon, Inc. is seeking nominations for its tenth annual Oticon Focus on People Awards. People with any degree of hearing loss are eligible. The national awards program, created by Oticon in 1998 honors hearing impaired students, adults and advocacy volunteers whose accomplishments demonstrate that hearing loss does not limit a person’s ability to make a difference in their families, their communities or the world. For over ten years, Oticon has worked to change outdated stereotypes that discourage people from seeking professional help for their hearing loss by spotlighting people with hearing loss and their achievements and contributions. Since 1998, the program has awarded more than $150,000 to deserving individuals and the not-for-profit causes of their choice. “We are proud to celebrate a decade of acknowledging the incredible contributions that people with hearing loss make in all walks of life, ” states Peer Lauritsen, President of Oticon, Inc. “We beli
Read more: Annual , Honors , Changing , Perception , Hearing

Stay Current with Resources and News on Hearing Loss, Subscribe to HearingExchange Feed
2007-03-18 19:42:07
Are you new to weblogs such as this one about hearing loss? Did you know that you can find out about the latest posts of news items, resources, links and more made at Hearing Exchange simply by clicking on the RSS link? Once you click on that link, it will bring you to a page that says this at the top: HearingExchange You are viewing a feed that contains frequently updated content. When you subscribe to a feed, it is added to the Common Feed List. Updated information from the feed is automatically downloaded to your computer and can be viewed in Internet Explorer and other programs. Learn more about feeds. Subscribe to this feed It will also show the latest posts that were made to the HearingExchange blog. Click on the “Subscribe to this feed” link to complete the process. By doing so, you’ll be able to see the latest posts at HearingExchange from your Internet browser without having to check our site. Our blog is very active and we’re adding new deaf and hearin
Read more: Current , Resources

Yes! Seniors with Hearing Loss May Be Eligible for Cochlear Implants
2007-03-18 15:40:08
As we age, many people lose some hearing since the hair cells carrying sound to our auditory nerve often begin to die. Even though it is called “sensorineural hearing loss” the nerve is usually not damaged, but the hair cells are, resulting in hearing loss. In past generations, elders had to deal with the frustrating isolation and difficulties of worsening hearing. Group environments such as holiday get-togethers or restaurant gatherings became places to avoid. The television volume was cranked up so they could hear but was uncomfortable for other household members. In today’s society, there are many options for people with hearing loss including digital hearing aid technology, state-of-the-art assistive listening devices and cochlear implants. Seniors often write to me asking for help with their deteriorating hearing loss. Time and again they are surprised to discover that they may be eligible candidates for cochlear implant surgery. Their age alone does not preclude
Read more: Hearing , Cochlear , Implants

American Academy of Audiology Research Shows Hearing Aids Do Improve Quality of Life
2007-03-20 01:53:46
Research Published in the Journal of the American Academy of Audiology Indicates Psychological, Social and Emotional Benefits An article published in the current issue of the Journal of the American Academy of Audiology (JAAA) (Volume 18, Number 2) indicates that people with hearing loss who choose to wear hearing aids do experience a better quality of life than those who do not wear hearing aids. “A Systematic Review of Health-Related Quality of Life and Hearing Aids: Final Report of the American Academy of Audiology Task Force on the Health-Related Quality of Life Benefits of Amplification in Adults” concludes that hearing aids improve adults’ Health-Related Quality of Life (HRQoL) by reducing psychological, social, and emotional effects of sensorineural hearing loss.  “Hearing aids can be a real challenge, especially for many elderly individuals. Their small size presents major problems for persons with arthritic fingers or with some loss of fine motor control,” accordi
Read more: Improve

“Through Deaf Eyes” Documentary on 200 Years of Deaf Life Premieres TONIGHT (3/21) on PBS
2007-03-21 12:54:48
THROUGH DEAF EYES is a two-hour HDTV documentary that explores 200 years of Deaf life in America. The film includes interviews with prominent members of the Deaf community, including Marlee Matlin and Gallaudet University president emeritus I. King Jordan. Interwoven throughout the film are six short documentaries produced by Deaf media artists and filmmakers. Poignant, sometimes humorous, these commissioned stories bring a personalized sense of Deaf life in America to the film. Through first person accounts and the film as a whole, THROUGH DEAF EYES tells the story of conflicts, prejudice and affirmation that ultimately reaches the heart of what it means to be human. Premieres Wednesday, March 21, 2007 at 9 PM ET. Check the PBS website for time and station in your area. THROUGH DEAF EYES is a production of WETA Washington, D.C. and Florentine Films/Hott Productions, in association with Gallaudet University. Major funding for THROUGH DEAF EYES is provided by the National Endowment for
Read more: ldquo , rdquo , Documentary , Years

Help School for Deaf Win Grant by Voting Online
2007-04-14 04:00:52
Please help Northern Voices, an oral school for deaf and hard of hearing kids in Minnesota to get a $10,000 grant. They are neck and neck with another organization and time is running out as the competition is over on Sunday, April 15th. If Northern Voices wins, the school will receive a matching grant for a total of $20,000 to teach children with hearing loss how to talk. The director of the program was a teacher of my daughter’s and currently serves as her mainstream consultant. Northern Voices is a Moog Curriculum School and is very deserving of this grant. All you need to do is vote for the school today, tomorrow and Sunday. Please vote each day. Your support would be GREATLY appreciated. Here’s what you do: Click on www.northernvoices.org Then click on the link on the right side of their page that says, “Click Here to Vote Daily” Select Northern Voices Enter the word they give you in the box provided Click on “Vote” (or “Enter” or “Submit”
Read more: Grant , Voting

See Spamalot Open Captioned in NY on April 18th!
2007-04-16 23:36:05
I have two Orchestra tickets to this Wednesday’s OPEN CAPTIONED performance of “Monty Python’s Spamalot” on Broadway in Manhattan. The tickets will be sold to the first person who clicks on the link below and pays for them via PayPal. PayPal accepts all major credit cards or payment via your bank account. Here’s all the details: Wednesday, April 18th Monty Python’s Spamalot - Open Captioned 8:00 PM 2 Tickets Orchestra seats Row M (12th row), seats 18 and 20 (right side of theatre) Cost: $115.50 total for both tickets (includes a $1.25 facility fee for each and a $3.00 service charge from TDF) Shubert Theatre 225 West 44th St (between Broadway and 8th Ave) New York City About the musical: Telling the legendary tale of King Arthur and the Knights of the Round Table and the quest for the Holy Grail in song, Monty Python’s Spamalot features “a chorus line of legless knights, men in tights (with legs), killer rabbits and sexy dancing divas


Workshop for Families of Children with Hearing Loss Birth to 5
2007-04-16 05:33:34
The Moog Center for Deaf Education in St. Louis will be hosting a Parent Education Workshop July 18 – 22, 2007. The workshop is for parents and their children with hearing loss ages birth to 5.  Each day is packed full of activities for the children and information for the parents. Children over age 2 are welcome to attend with their parents. Children 3 and up can be scheduled to have speech and language evaluations.  The workshop session meets daily from 9-3.  The adults will have classes in their professional education room and the children will meet in classes, divided by age and language ability.  They will have a 1:1 ratio of adult to child and each child will receive daily individual instruction by a staff member of the Moog Center.   Everyone will meet together for lunch, provided by the Moog Center.  Afternoons allow time for naps and weather permitting, the children will enjoy water play.   This will be their ninth year doing this workshop and it just keeps getti
Read more: Families , Hearing

Amazon Unbox Videos Have No Captions or Subtitles
2007-06-10 16:40:39
In his never ending quest to stay current with the latest gadgets and technology, my husband was very excited to try out Amazon ’s new Unbox  system this weekend. Unbox allows you to select videos to be downloaded using the TiVo DVR. We often have family movie night with our young kids on the weekend so this was a great development for us. Being able to download videos to our tv would be a great alternative to trips to Blockbuster or ordering from Netflix. Or so we thought. Here’s what happened… This is a copy of my husband’s letter to Amazon’s customer service regarding Unbox. I was very excited to learn about Unbox. Since I have several TiVO boxes, it offers the ultimate convenience in video rental. Today we tried it for the first time, planning a ‘familiy movie night’ with the new release “Happily Never After.”We were all very upset to find that the movie is being distributed without the closed captioning or an option for sub
Read more: Amazon Unbox

No Two Cochlear Implant Surgeries Are Alike
2007-06-09 20:07:08
The differences between my experiences with the Cochlear ’s Nucleus Freedom cochlear implant and the one I received 5 years ago for my other ear are a bit startling and so very exciting. In 2002, I received the Nucleus 24 Contour device, also from Cochlear. After the surgery, I had roaring tinnitus (ringing in the ears) as well as wall-grabbing vertigo (feelings of spinning and tilting as well as dizziness). I also lost taste buds on one side of my tongue. The tinnitus and vertigo only lasted a few days. My taste buds were restored 6 months after surgery. All are considered normal, possible side effects of having the surgery. My surgeon opted to use staples to close the wound behind my ear, an experience I found highly uncomfortable. After a week, I felt better and resumed most activities. I had my second cochlear implant surgery 3 weeks ago. It was also at NYU but with a different surgeon. (see previous post) After an overnight stay in the hospital, I went home with dissolvable
Read more: Alike

Paula Rosenthal Has 2nd Cochlear Implant Activated
2007-06-07 23:00:39
Sincere thanks to all my well-wishers in the HearingExchange community. I have fully recovered from my second cochlear implant surgery performed on May 16th at NYU Medical Center in Manhattan. My surgeon was the exceptional Dr. Tom Roland. His skill, kindness and compassion before, during and after both mine and my daughter’s surgeries enables me to recommend him wholeheartedly to anyone considering a cochlear implant or anyone in need of an excellent ENT. I chose Cochlear ’s Freedom device for my new ear and will be upgrading my original external implant on the other ear to the same device shortly. My new implant’s activation took place today with Bill Shapiro, the director of audiology at the NYU Cochlear Implant Center (a separate building from the hospital). Bill’s intelligence, easy-going manner and patience in explaining the nuances of programming made the appointment enjoyable. This surgery differed in many ways from my first cochlear implant surgery in
Read more: Paula

Patience a Necessary Virtue for Cochlear Implant Rehabilitation
2007-06-18 21:52:26
Twelve days after the initial stimulation of my Nucleus Freedom cochlear implant, I’m typing this without the processor on my ear. Unfortunately, I began to have sharp, sporadic pain in my newly implanted ear this morning. I visited my local otolaryngologist (ENT) to make sure that I didn’t have an ear infection. He confirmed my suspicion, the ear is experiencing pain from my latest map. With my kids finishing school this week and my daughter’s graduation, I am unable to get to NYU until Friday. While the pain is a new development, I’m marveling at the the remarkably similar experience to my first cochlear implant rehabilitation period 5 years ago. To date, I’ve had 3 mappings (software programming sessions) for the new ear. Typically, recipients undergo 2 consecutive days of mappings (each ranges from 1-2 hours), then return to their cochlear implant audiologist a week later, then two weeks later for subsequent mappings. Further maps are left to t
Read more: Necessary , Virtue , Cochlear , Rehabilitation

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